Saturday, August 31, 2019

5th eye surgery for our amazing girl

Dear Eleanor,

I haven't written to you in quite a while so this is long overdue. Tonight I want to share a little about your 5th eye surgery, which you had yesterday. This procedure was a Vitrectomy with removal of internal limiting membrane on your retina, which was clouding your vision. You were a little nervous. You knew surgery meant your doctor was going to work on your eye while you were asleep (but we didn't go into detail further than that because we didn't want to scare you). You woke up before 4:30am yesterday morning in anticipation. Dad gave you a beautiful Priesthood Blessing. He blessed you to with happiness, hope and love to others and to learn inspiration and happiness from your experiences and to share those with others. He blessed you to have the Holy Ghost to be with you to bring you comfort and told you that your mom and dad never stop thinking about you and your welfare.

You and Dad hugging after the blessing.

Here are some posts I shared on social media to keep our family and friends up to date about your surgery.

Today is another surgery for this beautiful girl. We are sitting in the same waiting room where we sat while we waited during her first surgery. But that day, when she was only two months old, I couldn't stop the tears from flowing at the thought of my baby girl in the operating room. I paced the halls most of the time. We have done this several times now and I am more at peace about it but this is the first time she really remembers doing this and she was pretty nervous. And hungry. She got up before 4:30 this morning in anticipation. Wendel gave her a beautiful Priesthood Blessing this morning. She has experienced several difficult things in her four years and she is definitely a fighter. We're looking forward to lunch + ice cream with her when she's done (per her request). #wecandohardthings #eleanorkate @ Phoenix Children's Hospital





I snapped this picture very quickly, right before they wheeled you off to surgery. You were pretty nervous here.
Comments


An update on Eleanor: surgery went well. Her doctor said it was a difficult surgery but things went smoothly. Waking up from the anesthesia was not a smooth transition. She screamed, cried and tried to rip her patch off for about 45 minutes. Wendel and I had to sit on her bed and hold her hands down so she wouldn't rip off the patch and damage her eye (it itched a lot from the anesthesia) and hold her legs down so she wouldn't rip out her IV. The nurse eventually put Eleanor's arms in a restraint to keep her from hurting herself. It was hard to see her in so much pain and distress. I took these pictures on our way home, sitting next to her in the back seat. She is awake now and doing so much better. The itching is gone and she is calm and happy. It's been a long day but it's another surgery behind us. We're grateful for the amazing medical professionals at Phoenix Children's and for amazing friends who reached out to us in prayer, uplifting messages and service. ♥️#wecandohardthings #eleanorkate

I didn't share this picture on social media but will share it here. You hated these things on your arms that kept them straight so you couldn't touch your eye. You were so miserable on the first part of the ride home but then fell asleep next to me.



My post today:
Look who is feeling quite a bit better today! She has decided she isn't a fan of surgery but she's doing so much better. We went to her follow up appointment this morning. Her eye pressure is good and she doesn't have inflammation. After her appointment, we got some Jamba Juice and then saw this cute wall across the street. I thought checking it out might cheer her up. I can tell she still doesn't feel the best in these pictures but she's smiling and her eye is feeling so much better. Her doctor gave clearance to have her patch off during the day for the most part and only keep it protected at night. You wouldn't even know she had surgery by looking at these pictures unless you looked inside of her eye. I had tears in my eyes as Wendel and I tucked her in tonight. Eleanor is such a blessing in our family. I'm so grateful for her and the many things I get to learn as her mom. There's a special closeness to heaven when you are blessed with a child who has special needs. It is a sacred journey. ♥️#wecandohardthings #eleanorkate




Look who is feeling quite a bit better today! She has decided she isn't a fan of surgery but she's doing so much better. We went to her follow up appointment this morning. Her eye pressure is good and she doesn't have inflammation. After her appointment, we got some Jamba Juice and then saw this cute wall across the street. I thought checking it out might cheer her up. I can tell she still doesn't feel the best in these pictures but she's smiling and her eye is feeling so much better. Her doctor gave clearance to have her patch off during the day for the most part and only keep it protected at night. You wouldn't even know she had surgery by looking at these pictures unless you looked inside of her eye. I had tears in my eyes as Wendel and I tucked her in tonight. Eleanor is such a blessing in our family. I'm so grateful for her and the many things I get to learn as her mom. There's a special closeness to heaven when you are blessed with a child who has special needs. It is a sacred journey. ♥️ #wecandohardthings#eleanorkate




I wanted to include some of the comments I got on social media so you can see how loved you are.

We love you sweet bean. Love, Mom






Image may contain: 1 person, smiling, sitting and child



Saturday, December 29, 2018

Halloween 2018

Two cute skeletons, a cool older skeleton, the cutest mummy ever, and Cinderella (affectionately referred to as Ellie-rella). 









Friday, August 31, 2018

Photo Shoot with Grandma Utah August 2018


Fun photo shoot with Grandma Utah during her visit this month. I took these pictures of you guys at a park here in Maricopa. I love how they turned out. 
Left to right: Skye, Adalei, Eleanor, Josh, Grayson, Grandma, Zach, Oliver and Nathan
I love these of you with your cousins. You don't get to spend a lot of time with them but it's still fun that you are all so close in age. Such cute girls! 










Thursday, June 14, 2018

January 2018

Dear Norah,

You are wonderful and I love you.


  • You said to me one morning: "Mom, I wish I could have exercise clothes and a phone and long hair." (Like me.) That made me laugh.
  • You are suddenly very interested in potty training again. You still go in your pull up sometimes but we're seeing improvement. You filled up your whole potty chart with stickers and daddy brought home "rainbow" (Neapolitan) ice cream for you. You loved it. 
  • You started dance lessons the other day. I hope you never lose your confidence. You are amazing.

Monday, May 21, 2018

January - April 2018


January


We went to the zoo as a family in January. There was a fun Dinosaurs in the Desert Exhibit. We had a great time.




















  • You were crossing the monkey bars at the park and fell just before I got to you. After I made sure you were okay, I told you it's okay to fall and to just keep practicing. You told me, "I want you to be right by me when I fall." I couldn't help but think of this symbolically and how I will always be there to do just that throughout your life, no matter what trials and difficulties come your way. 


February
  • We are in full potty training mode. It seems like we take one step forward and three steps back but we're working on it. You like to tell me what your poop looks like in the toilet. "Mom, my poop looks like an onion!"
  • Eleanor drew a picture of a person. "Mom, I drawed a human! I'm really good a drawing humans!" 
  • Your eye looked a little bruised so someone asked you, "What's wrong with your eye?" You, having heard me explain about your eye to curious kids in the past, said, "I was born..." It kind of broke my heart a little but I'm also proud of you for taking the initiative to explain it.
I love this picture of you so much. Your cute smile, your hands by your face, the adorable jacket you're wearing. 

Another favorite. Dad gave both me and you flowers for Valentine's Day and he also gave you this necklace, which you love.


April

  • Whenever the babies cry, you sing "I am a Child of God" to them. It's so sweet. 



Monday, April 30, 2018

February - April 2018

February 

  • Someone asked you what was wrong with your eye (because it looked bruised). You said, "I was born..." It kind of broke my heart a little bit but I see you wanting to tell people about your eye and that's good, too. 
  • After going potty, you exclaimed, "Mom, my poop looks like an onion!"
Enjoying a Yogurt Jungle reward after filling up another potty chart. Getting closer to saying goodbye to pull ups! 
I love this picture of you. You are adorable.
Dad got us both some flowers for Valentine's Day and he got your this pretty necklace, which you love. You have a pretty great dad. He calls you "Sweet Bean."
Sweet little helpers. The babies were hungry so you and Josh fed them while I made dinner. 
March
  • On March 8th, you had your fifth eye surgery. Here is what I shared about it on social media: "Surgery went well. Her doctor tightened the bottom muscles of her small eye with the hope that it will help bring her eye down so it will look straight forward instead of rolling up. During her last surgery, he tried loosening the top muscles to accomplish the same goal but it didn't work. We're hoping for success this time but it will be a couple of weeks before we'll know. She is recovering now. Her eye hurts, her nose itches from the anesthesia, and her tummy feels a little sick but she's doing great. Thank you for the thoughts and prayers. ♥️ #eleanorkate #wecandohardthings


April
  • Every time the babies cry, you sing, "I Am a Child of God" to them. It's so sweet. 
  • You only pee in your pull up now and go poop in the potty. You're making great progress! 
A post-baseball game treat at Yogurt Jungle, thanks to you filling up another potty chart. Way to go!



Easter at Grandma & Grandpa Schultz's house. 2018
Beautiful girl. 
You are a wonderful girl and I'm so glad you're in our family. 

Love, Mom